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Music

DJs, David Suzuki and Pain Relief Medicare Doesn't Cover

Posted by Jonathan Rothman / March 7, 2007

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It's hard enough to party with a hangover, but a little grogginess can't hold a glowstick to Pamela Finnie's pain. The 23-year-old University of Alberta - Edmonton student has a rare tumor in her jaw called an ameloblastoma, which although benign could cause facial deformities if it's not removed. Finnie's family, including the Yared clan here in Toronto, have solicited Mt. Sinai Hospital's Dr. George Sandor to perform the surgery, which together with other costs -- tooth implants, Finnie's lost wages during recovery time, Edmonton-Toronto flights and a bone graft from her hip -- add up to an estimated $20,000 or more. Only the surgery ($3400) is covered by Alberta's health plan, while the rest of it, considered dental and cosmetic and thus not covered, sticks Finnie's family with the bill.

To pitch in, Finnie's cousin, publicist Jessica Yared, has organized "Scene Therapy", a night of dance music to benefit Finnie's cost, with a smattering of DJs spinning house, breaks, minimal techno and other upbeat, er, beats. And there's one more prominent ally in the family's corner. (More after the jump.)

Even if the crowds attend and donate in hordes, Yared says in her media release, the unfortunate reality is that "it will only make a small dent in helping foot the bill for surgery and other related costs ... the hip graft [transfer of bone from hip to jaw] and processing, as well as the tooth implants, which are considered dental in nature, are covered by neither the Alberta nor the Ontario government health care system."

However, Finnie and Dr. Sandor are allowing a camera crew from David Suzuki's The Nature of Things to tape the operation, hoping to "put pressure on the government to cover costs for future patients with ameloblastomas.

Yared notes: "Finnie is no stranger to hospitals and serious illness [link]. At the age of 10 she was diagnosed with Leukemia and experienced three harrowing years of chemotherapy treatment. Unfortunately, that doesn't make the upcoming surgery any less frightening. She will have to undergo a bone-graft from her hip, the removal and reconstruction of part of her jaw using a metal plate, and tooth implants after her jaw has recovered. A nerve will be severed which will result in partial paralysis of her face."

Wow. Worth 10 bucks of support cash apiece, don't you think? That donation gets you 45 minutes of the best beats from each of the following DJs, all well-favoured among local dance music fans:

Mike Gleeson (house), Red Turtle (breaks), Hali (tech-house), Sarah Mixington ("groovy sexy techno"), Mike D (scroll halfway down; minimal techno, or Christian rap/death metal if you believe his sillyheaded Myspace), Caz (breaks), Mat Lunnen (house) and Lady Linzee (hard house)

And if you can donate but don't care to attend, Finnie's aunt, Irene Yared, has set up a trust fund at TD Canada Trust to receive donations. Jessica Yared: "Anybody wishing to donate can do so at their local branch, or over the Web. The branch number is 0252 and the account number is 6279046."

Scene Therapy
at Footwork Bar, 425 Adelaide St. W. (entrance off Brant St.),
(416) 913-3488
Thursday, March 8
Music begins at 9PM, set times here.
$10, all proceeds to Pamela Finnie & family

Discussion

7 Comments

Melanie / March 7, 2007 at 01:22 pm
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Hi Jonathan,

I just went through this ordeal in December to now. I have tons of info to share with the Finnies. My doctor is a collegue of Dr. Sandor in the same clinic.

Please let me know how to contact her.
thanks!
m
Jonathan / March 7, 2007 at 03:03 pm
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hi Melanie,

Thanks for commenting and offering your input, sounds like Pamela's family will welcome it indeed. Send me a note at jonathan at blogto dot com and I will connect you from there.
pdurant / March 7, 2007 at 03:10 pm
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My son had the same situation here in the USA - fortunately, our private health insurance company is more enlightened than the Canadian government about what is and what is not "cosmetic" and has paid for all the procedures necessary. Unfortunately, his first bone graft done last May (using rib bone to reconstruct his maxilla) failed and he now faces having the operation done again using hip or leg bone.

I do not understand how replacement after removal of half the jawbone and teeth due to this viciously agressive (never could understand the term "benign" being applied to it as it causes massive destruction if left alone) be considered cosmetic. I do not know what the appeal procedures are in Canada but if it were my child, I'd be finding out. It is outrageous that her treatment after such a devastating diagnosis is considered unnecessary.

Rochelle / December 5, 2008 at 03:07 pm
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I have just recently noticed my lower left jaw was painful, but there was no bruise, so I began feeling the edge of the jaw bone and noticed a very painful dent in the bone, as if it's dissolved or perhaps during one of my "flying through air" accidents as I suffer from chronic pain and am disabled, and will drag my left foot, causing me to trip over my own feet half the time. I am very worried. Don't know if it's considered a "dental" problem or"medical" problem are related to my chronic pain syndrome I suffer from.

I am glad pdurant that your son's case was handled as a medical case and agree totally about loss of half of one's jaw and teeth, and having it repaired are considered "cosmetic".
Shannon Zoerb / October 6, 2009 at 04:02 pm
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Pamela!!I had Ameloblastoma and this Oct.23rd/09 will be my 2 year Anniversary of recovering.I would love to talk to you about this.You have my Email address.Maybe we can help each other.Take Care and hope to talk to you soon.
christie ramos / July 5, 2010 at 04:16 pm
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I am sorry to hear about your ordeal with insurance coverage. Trust me I know what your going through. Besides having kidney failure from 05-09 (got a transplant 4/09). I had an ameloblastoma in my jaw two years ago and it was surgical removed. I am having pain in my face again and I pray that it is not amelobalstoma. Your family is in my prayers.
elaine / December 11, 2010 at 04:56 pm
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Its such a shame to have to go through this. At the age of 14 I had ameloblastoma (am now 40). I live in the UK and all bills was paid by the NHS.It would have been a nitemare to have to pay that bill. Although i thank my God for the surgery and my life it has destroyed my life in the sense that it left me with a deformed face. Resulting in low self-esteem, no confidence and a whole load of troubles. Currently 26years on and i still have problems. I am looking for a skilled surgeon who will sort everything out for me well at least not to be starred at or people making hurtful remarks. So if anyone knows of one please let me know. I will like to know how others are dealing with any deformity.
Remember to pray and it shall be well

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